Patient- and family-reported experience and outcome measures for elderly acute care patients: A knowledge synthesis
- In Stage 1 we identified questionnaires designed to measure patient- and family reported outcomes (PROMs) and patient/family-reported experiences (PREMs).
- In Stage II, the focus was on producing a comparative evaluation of PROMs and PREMs designed to provide important information from the perspective of patients and their families in order for clinicians, administrators, and decision makers to ensure that the needs and concerns of seriously ill elderly patients and their families are fully understood.
- In Stage 3, we identified and evaluated the PROMs and PREMs that had been designed specifically for the use with elderly patients in acute care and their families. Only 3 were identified:
- Quality of Dying and Death (QODD),
- Canadian Health Care Evaluation Project Questionnaire (CANHELP),
- Canadian Health Care Evaluation Project Questionnaire - shorter version (CANHELP LITE).
- Our quality evaluation showed that the CANHELP and CANHELP LITE were very good and can be recommended for use to understand the patients’ and their family caregivers’ health care experiences.
Although there are many PROMs and PREMs used in acute care for seriously ill elderly patients and their families, only one tool had been specifically designed for measuring health care experiences. None of the PROMs had strong evidence for measuring quality of life concerns for this patient group and their families. More research in this area is urgently needed so that the concerns and health care experiences of patients and their families can be routinely monitored and assessed. Currently a peer-reviewed manuscript and a presentation of this project at the annual conference of the International Society of Quality of Life Research (to be held in Vancouver, 2015) are being prepared and submitted.
PREMS and PROMs for elderly, acute care patients - webinar hosted by TVNPrincipal Investigators: