Interesting Reads - Special Issue "Family Communication at the End of Life" | https://t.co/cc55QjGEqE
An electronic quality of life and practice support system (QPSS) for person-centered older adult care
This free webinar, organized by the Canadian Frailty Network, was presented on April 20, 2016.
The imperative of person-centered care requires that the voices of palliative older adults and their families are represented at all levels of health care decision making. Routine assessments of perceived healthcare needs and quality of life (QOL) can make patient and family caregiver concerns more visible to healthcare professionals, so they can be effectively monitored and addressed. These assessments involve asking people about symptoms, physical, psychological and social wellbeing, and their experiences with healthcare. Join Network investigators Richard Sawatzky and Kara Schick-Makaroff as they discuss the design and integration into care of an Quality of Life Assessment and Practice Support System (QPSS). Developed in collaboration with healthcare professionals, patients, and family caregivers, QPSS is a tablet-based practice support tool for adaptation by clinicians in multiple care settings (hospital, home care) that assesses health and QOL concerns of older people who have chronic life-limiting illnesses and those of their family caregivers.
Dr. Richard Sawatzky, PhD, RN: Rick is Canada Research Chair in Patient-Reported Outcomes and holds positions as Associate Professor in the School of Nursing at Trinity Western University and as research scientist with the Centre for Health Evaluation and Outcome Sciences (CHEOS) at Providence Health Care. He completed his doctorate and masters degrees in nursing at the University of British Columbia and his undergraduate studies at Trinity Western University. Dr. Sawatzky’s clinical background is in palliative care and medical nursing care. His program of research focuses on the measurement and use of patient-reported outcomes (PROMs) and quality of life assessments in the care of people who have chronic life-limiting conditions.
Dr. Kara Schick-Makaroff, PhD, RN: Kara is an Assistant Professor in the Faculty of Nursing at the University of Alberta. She completed her undergrad at the University of Saskatchewan, her masters and phd at the University of Victoria, and postdoctoral fellowship at the University of Alberta. Kara's research interests are centered upon enhancement of quality of life for people living with chronic and life-threatening illnesses. A major component in Kara's research involves the use of electronic patient-reported outcomes (ePROs) in the multidisciplinary care of people living with life-threatening illnesses, particularly in end-stage kidney disease.